Update

So here it comes again....another pretty long and boreing update...are you ready for it!?! So as many of you know Brynnah's feeding tube got a little messed up and we spent our anniversary in the ER trying to get someone to try and figure it out and get a pic of it so we would know what to do next....Anyhow, we ended up getting called on Tuesday afternoon and they asked if we could be in SLC the following day for a tube replacement. So off we went to Ryan's brother's to stay (her appointment was at 9 am) I just want to give a big thank you to Rick and Melissa for opening their home to us and doing all the entertaining and such!!!! You guys are FABULOUS! So the next day when we go to Radiology to get the tube replaced....we wait for about an hour...then go back for the proceedure. The doc asked me when Brynnah had her tube placed...it had been about 8 months....and he proceeded to tell me that we were supposed to have it replaced every 4-6 months! YIKES! As most of you will remember....when we got Brynnah's tube placed the doc told us NOTHING about the tube...So I guess now we know to get it replaced more often! Everything went really well...Brynnah was soooo brave! She was charming all the docs and they wanted to keep her! Honestly, I think the doc asked me like 5 times if I would just leave her there! I have to admit she is ADORABLE! Anyhow, after that fiasco, we went back to Rick and Melissa's for THANKSGIVING which was fabulous! (i'll be posting some pics) The kids had so much fun playing together and everyone had a wonderful time! I decided to stay in SLC as we had another appointment for Brynnah on Monday and as I was going to be going down by myself anyway I decided not to make more trips than necessary....so we hung out and was able to see TWILIGHT for the second time! LOVE IT! When Monday morning rolls around I get a call at 7 am ....it was the clinic telling me that they had to cancel Brynnah's appointment and wanted to know if I could come back on Thursday.....I told them a big fat NO! We had already spent almost a week there waiting for this appointment. So we re-scheduled for the 22nd....which actually works out. We're going to be spending Christmas in St. George with Ryan's family and we can leave a day early from SLC! So no new news about Brynnah's condition and no further testing on Ryan for the kidney transplant....bummer I know! Soon...we're hopeing so we can get things rolling! And....another bummer Brynnah is sick right now...and it's slowly but surely progressing...I'm just praying she's not hospitalized for Christmas. We knew this day was coming but weren't entirely prepared for it to happen just yet. So definately keep us in your prayers!!! I also wanted to list some things I'm greatful for because it seems like it's going to be a downhill slope for us for the next while and I have to keep positive thinking for Brynnah's sake so here it goes.....
I"M THANKFUL FOR:
MY BEAUTIFUL FAMILY
A LOVING AND VERY PATIENT HUSBAND
A BEAUTIFUL AND SPUNKY LITTLE GIRL
A VERY HYPER DOG
A FISH TANK AND FISH THAT AREN'T COVERED IN GREEN
A BEAUTIFUL APARTMENT AND THE DWELLING OF THE SPIRIT WITHIN
A WONDERFUL FAMILY WARD.....THEY DEFINATELY FEEL LIKE FAMILY
AWESOME CALLINGS WITHIN OUR WARD
A STRONG TESTIMONY OF THE TRUTHFULNESS OF THE GOSPEL
TEMPLES
MY HEAVENLY PARENTS
MY SAVIOR AND ELDER BROTHER JESUS CHRIST
ATONEMENT
OPPORTUNITY TO BE AN ETERNAL FAMILY
FANTASTIC IN-LAWS AND EXTENDED FAMILY
WONDERFUL GRANDPARENTS THAT CALL AND CHECK ON BRYNNAH
FRIENDS
CHRISTMAS
MINE AND RYAN'S HEALTH
BRYNNAH'S PROGRESS
BRYNNAH'S THERAPISTS
ANSWERS TO PRAYERS
HOW IN LOVE WITH MY HUSBAND I AM
BOOKS....TO LET ME KNOW THAT OTHER'S HAVE IT WORSE THAN I DO
PCMC....AND TECHNOLOGY THAT HELP MY LITTLE GIRL LIVE
HOLY GHOST
I'm sure the list could go on and on! Thanks to all of you for all your love and support we are forever greatful!
Lots of love