Friday, July 24, 2009

Sorry I haven't updated sooner....so here's the scoop...Brynnah actually is being discharged tomorrow!!!! Bad news is....is that we have to stay in SLC for another week. They kidney specialists want to see her twice a week for the first week and then once a week for a month. After that if there aren't any problems we go to every other week and finally once a month! We're soooooo extremely excited at the prospect of going home soon. I can't believe the whole summer is almost gone...it's kind of been nice in a way...I HATE the heat. And...it will be closer for our vacation to San Diego!!! Brynnah has been doing really well! She's been doing a lot of therapies here in the hospital...so hopefully that will make things a little easier when we get home! She has lost most of her muscle and strength in her legs...she hates crawling and refuses to walk or stand...but we'll get there! We've been doing some feeding therapy with her and I am amazed to find that she does really well with a spoon(which she never did at home with therapy) and she LETS me brush her teeth and will "open wide" on command!!!!!!! I'm sooooo surprised at her improvement already. She is definitely a whole new girl. Of course all the nurses, doctors and staff just LOVE her and can't get over her extremely mellow personality. On the ICS (immuno-comprised unit) when we leave the room she has to wear a mask...which she absolutely loves and insists on wearing it even when we are outside and she no longer needs it...she also sports her very fashionable Tinkerbell shades(which she also insists that she wear with her mask...even inside!) Ryan went back to work this week and is loving the fact that he has something to keep himself occupied! He's such a trooper! I tell you what I have the BEST family in the whole world! I am definitely so blessed! I'm so grateful to have my little girl back to her somewhat normal self and to see her get stronger and better every day! Thank you for your prayers they are what really kept us going... Lots of Love.

7 comments:

Aleisha said...

YEAH! that is such good news! Way to go! We can't wait to see pictures and come visit the "new girl".

Stringham Family said...

I'm so happy for you guys! That is so exciting! It's been a long road, but you are almost home and together as a family again! That will be so awesome! I hope things continue to go smoothly. I feel bad that we haven't helped Ryan out. We have been gone most of the summer. But, we should be home for the most part from here on out, so if you need meals or anything, please let us know. Good luck in the next few weeks!

Unknown said...

Hooray! That sounds so good! Keep getting her strong... :) I was hoping for some fun pics of her tinkerbell shades! :)
Hang in there!

cjmom said...

You need to get a picture of Brynnah with her mask and tinkerbell shades. That just sounds too cute.

Murdoch Clan said...

JACQUI! It's bee awhile since I've been a blogger junkie, so I've got a LOT of catching up to do on everyone! WOW! So glad that worked out with Byrnnah! Can't wait for her to be home with her wonderfully awesome parents! Love ya much, and I appreciate all of your SWEET sweet comments on my blog, love ya, and miss ya! Laura Eb

Emily said...

Yippee!!

Trevor and Dayna said...

Wow you are an amazing woman. I really admire how strong you are. I'm sure it gets hard though. Glad things are going well, you are still in my prayers.