Update

Brynnah saw her cardiologist on Monday. Everything went pretty well. The visit consisted of weight check 19# 6 oz. (she gained a pound were just hoping that it's not water weight) Height check 30" (she's grown a quarter of an inch in a little over a month!!! Thanks to her growth hormone shots.) She also had an EKG which looked pretty good. Her doc said that from a heart point of view everything looks really good. On the other hand everyone has been really concerned about her lungs. She recently was diagnosed with mile pulmonary hypertension. Her sats drop really low really fast which isn't consistent with her diagnosis. The heart doc said that there's a good chance she has something else going on with her lungs that's causing the hypertension. So she is being referred to a pulmonary specialist at Primary Childrens...hopefully we can get in soon. The good news is that she is responding well to oxygen. He also said that he wants us to come to his clinic and do another sedated echo in June. I think that about covers it!