Update

Hey everyone! It feels like I haven't posted anything forever! Just wanted to update everyone and let you all know how things are going. Brynnah is doing much better since the whole super dehydrated fiasco...she's still throwing up at least once a day and I talked to the Nephrology(kidney specialists)clan and they were thinking possibly another surgery. It would be to make her existing G-tube an GJ-tube(which means that the tube would be placed in her intestines instead of her stomach) so she can't throw up! Which would be FANTASTIC...but it's still another surgery. They were going to get ahold of me this week to talk over what we want to do...so I will keep you all posted. As well as having a renal appointment on the 18th of this month she will also be having another sedated echo(ultrasound of her heart)to make sure everything is still going ok. She also will see the pulmonary specialist the end of the month!!!!YEAH....finally! So I will also let you know how that goes. Brynnah is still doing lots of therapies...she just got approved for speech therapy for talking...and it's going really well! She has also been cruising furniture! She goes all over the place which is fantastic and a huge accomplishment for her and we couldn't be more proud of her progress. The growth hormone shots seem to be working well...I don't know that she's gotten any taller since last month but we certainly hope so! I think that's about it for now...but I will definately be posting at least next week.