Friday, June 20, 2008
Update
Wow I totally feel like all we do is update people on what's going wrong with Brynnah. So this week was spent in SLC. Brynnah had a sedated echo(ultrasound of her heart) which I'm assuming that all is well because we never even saw a Doctor weird huh? Anyhow I guess they will contact me if they find something disturbing. Brynnah also had her Nephrology(kidney) appointment later that afternoon...and everything is ok...her kidney function has gone down a little bit more and she has only gained a couple of ounces...and she has NOT grown at all since last month which is totally a bummer but we kind of expected it as much as she throws up all the time. Anyhow I had to practically beg the doc to let Brynnah have the surgery to make her g-tube a gj tube(it will go into her intestines so that she can't throw up) So finally after having stood up for myself and my daughter she will be having the procedure done next Friday afternoon after her Pulmonology(lung) appointment...so YEAH!!!!! The Nephrologist also says if everything is completely fine with her lungs(which they aren't so we're not crossing our fingers)that she might be able to have a kidney transplant done in August!!! so it's excited but like I said we're not even going to think that positive until after we see the lung specialist. So to get the ball rolling anyway they are sending us the kidney transplant packet that we have to fill out...so that's good at least we're doing something! For those of you who don't know Ryan left Father's day to POST academy in Boise for his job. He will be coming home this EVENING!!!!! I'm so excited I thought he wouldn't be coming home for another couple weeks! He will be graduating July 18th !!! So we've got a few more weeks to go but all in all it will be a good thing! I guess that's it for now and I will definitely be posting next week to let you all know how the lung specialist goes.
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6 comments:
Good job standing up for yourself I hate trying to tell a doctor I know better than they do but sometimes you just do! We will be praying for healthy lungs!
I am so glad that Ryan is home for a few days. I hope everything goes well for Brynnah. We will pray for her and your family. If you need anything, please feel free to call us.
Also, we know the Reddish's because Jesse and Trevor are in the Guard together and Dayna and I met through them. How do you know them?
Our Phone number is 233-1102 or 406-4004 Jesse has the cell alot, so unless I'm with him the home phone is probably the best. However I am working on getting another cell phone so that people can get a hold of me better now that I am working and stuff. Please do keep us updated, and call me so we can get together. Did Ryan get back to Boise ok? Sure hope so. Talk to you soon.
I am so glad that you are such a strong woman. That red hair just doesn't make you look good.... I'm so glad that Ryan is home for a little while. What a relief. I was think about getting together this week some time but I'll give you call and we'll figure something out.
Jacqui! I found your blog on Janelle's. It's so good to find you! Your little girl is so adorable! Wow, it sounds like you've been through alot. It will be fun to keep in touch with you and your family through your blog!
I hope she gets feeling better. I'd give her my kidney if I could, but unfortunetly mine probably aren't in tip top shape either. I feel so bad that she's so little and has had to go through so much. You all have. My prayers and thoughts are with you. Love your face. Give her kisses for me.
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